Thomas was on really good form today. He looks gr8 and all his obs were spot on again BUT the fluid is still coming. . . . I've had a hard day emotionally. It's so tough being in here. I know there were no guarantees given abt length of stay cos each child is diff but now we're over the 3wk mark and still no end in sight. It's hard being separated from Samuel as well. It was gr8 going home but a wrench to leave. Thomas doesn't seem poorly in the slightest now so it makes it harder to be in hospital. This drain is just SO frustrating for us we're trying so hard to keep our frustrations hidden from Thomas. He does seem on good form and pretty chilled abt things. He walked down 2 flights of stairs today to the play centre and altho we took the lift on the way back it was down the opposite end of the corridor so he had a pretty long walk and wasn't puffed. Now that does feel good.
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