For some reason this post disappeared. . . . Thomas has had a cannula removed today, a couple of plasters and the sticky dressing they put on the central line. It took a while and was a bit of an ordeal to be honest but we got there. Of course i didn't thk to practice removing things in our hospital play, just putting them in! He's still doing well and his chest drain drained a bit less yesterday so that is good. I hav met a family today the young man is 17.5yrs old and hlhs (the oth side 2 Thomas). He was in for a cardiac catheter. His dad was one of the families that set up left heart matters - the charity that is now Little Hearts Matter - all those years ago. Had a lovely chat with mum and dad and then they introduced me to Jack. V inspirational - he got 11 GCSE's and is running his own little business. A small slipper shop. It's always a real boost to meet young adults with half a heart. He's not always had it easy but he's a very independent inspirational young man.
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