Thomas' Out patients Appointment - 24th October

Thomas had a clinic appointment today at the Heart Unit in Birmingham. They checked his oxygen saturation levels and these were 71/72% so they are beginning to drop but this is to expected as he grows. It is normal for babies with single ventricle conditions like Thomas' to be in the 70's, babies without heart problems are nearer to 100%. We asked the registrar whether he could give us an idea of when 'before Christmas' Thomas next op might be and he proceeded to tell us he had checked with Mr Barron's secretary and we are on 'the routine list' and it is likely to be January/February time. This is obviously different to what we were told on 6th Ocotber when we met with the surgeon. We appreciate there may be other babies who's need is greater but equally we don't want Thomas to deteriorate, we want him to be as strong as possible for the operation. It feels like we are being pushed down the list because he is doing well so we have asked the registrar to find out what is going and let us know. Anyway it's great that the little man is doing well so we must try and focus on this but we do feel like life is on hold a bit at the moment.

Thomas started saying 'Da da da da' last week, much to Paul's delight seeing as he has been saying 'Ma ma ma ma' for a few weeks now :-) He's also showing the first signs of being interested in crawling. He wants to be on his tummy and he pulls his knees up so his bottom is in the air. He's already getting frustrated by it though and has got a long way to go yet before he's off....

Here's a piccie of our little rascal......