Little Hearts had a stand at the Good Food Show last weekend to promote it's annual fundraising Cookie Bake and raise awareness, I manned the stand on the Saturday and it was absolutely mobbed so I really hope it turns out to be a successful venture for them.
Lesley Waters, the Ready Steady Cook chef, promotes the Cookie Bake for LHM, she was making a guest appearance at the stand at lunchtime so Paul brought Thomas along and he decorated cakes on the stand with Lesley and one of the other Little Hearts kids. He got really into it and loved having an audience, I was proud as punch when I could hear people in the crowd commenting how cute he is. Lesley was really impressed with him and assumed that we do baking together at home all the time.................which of course we don't eeeeeek ;-) I think Thomas just loves getting all sticky and messy and eating biscuits!!
He's soooooooo lovely at the minute, he's saying more and more words by the day and stringing them together which is great. He's like a parrot and repeats everything you say so we have to be really careful. The cutest thing he has started to say is 'love you', initially he was just repeating me but over the last few days he's said it spontaneously and it absolutely melts my heart. Sorry to be a gushing mother but it really is one of those special moments.
Just a quickie to let you all know that Thomas has chicken pox!
We thought we'd just about escaped it as he'd been snogging his little friend the other week who came down with it but alas no. He's not too bad with it at the moment but is getting more spots by the day. He has lots on his head, round his eyes and his hairline. Bless him.
I do hope he isn't left with any scars - he has two already!!!
Thomas completed his toddle on Sunday at Shugborough Hall in aid of Little Hearts Matter. He was one of the youngest taking part and dressed up as a spider for the occasion. He has raised a staggering £400 for LHM which is pretty marvellous. Thank you very, very much for sponsoring him, you were all really generous. Paul & I are very proud of our little spider.
Here he is in trepedation waiting to start....
And here he is looking a little sad that's it all over, with his medal having a well earned chocolate fix!
Thomas is doing a sponsored 'Toddle' this Sunday for Little Hearts Matter at Shugborough Hall in Staffordshire.
Little Hearts Matter is the charity that supports families of children born with half a functioning heart. As you know LHM has been a huge support to us since we found out about Thomas' heart two years ago and it needs to raise £250,000 a year to keep it's services and research running.
Thomas is taking part in a sponsored Toddle on Sunday so please dig deep in your pockets to help him raise lots of money. Click on the Donate button below and you can sponsor him online.
Thomas is featured in this months Mother and Baby magazine (pg 145 to be precise;-) It's an article on his story covering the antenatal diagnosis, his condition and operations. It's to raise awareness of congenital heart conditions and the charity, Little Hearts Matter, but more importantly to give a bit hope to anyone else going through a similar thing.
I'msure once word gets out about how cute Thomas is we'll have OK and Hello! magazine queuing up to interview him ;-)
As well as his new found celebrity status Thomas has started nursery for one morning a week. It was his first day yesterday and after the initial cry when I left him (I'm told they ALL do this) he was fine, he played well and ate all his dinner - how come he doesn't eat new potatoes when I cook them for him!
He's also had another holiday. We went to Pembrokeshire foraweek and had a really lovely time. We managed to get on the beach on 4 days and Thomas absolutely LOVED throwing pebbles into the rock pools. Hours upon hours of fun - he just never got bored of it. Here's some photo's of him enjoying the beach.
Thomas is becoming a right little chatterbox (not sure where he gets that from). He's now stringing together two or three words and is picking up new ones everyday. We're teaching him to say 'please' as his favourite phrases at the minute are, 'get it', or, 'want it', so he now says 'get it peease' (he can't pronounce his l's very well). He's already cottoned on that when he says 'peease' so cutely we give in immediately as we just cannot resist him. He's so much fun at the minute though, it's much better now he can communicate a bit with us and means he gets less frustrated. He's really into diggers, cars, trains, buses, planes and footballs so a typical little boy! Here's a couple more photo's of him looking particularly cute.
It's been a while since I posted; the little fella has been having a lovely summer despite the rain. His last appointment at Birmingham back in May went well, they were really pleased with him and have now put us on 6 monthly appointments so we're due back just before Christmas (lets hope we get some summer before then!).
Thomas has had 2 breaks away, one in Padstow in June and then in Branscombe in Devon. He's a real beach bum, he's loves demolishing sandcastles and loves clambering all over us when we try to lie down for 30 seconds. We're a bit concerned though as he seems to prefer other peoples company to ours on the beach, he was forever muscling in on other families and demolishing their sandcastles and took a liking to an old couple's wind break! All in all he had a lovely time.
We've had a conservatory built over the last month, Thomas was really interested in all the building work that was going on. We haven't had the sofa delivered yet and it needs to arrive soon before Thomas' toys completely take over the room. It's great though, I can see it's going to be well used.
He's particularly into climbing at the minute and seems to be gaining bruises by the hour. He's got two bumps on his head and looks like he's been in the ring with Mike Tyson. The boy has NO fear!! His speech is coming on nicely, he knows quite a few words and he's trying to repeat words that you say - hmmm... better watch out what we say!
Our boy had his first official haircut last week. He was so good I was amazed and I didn't have to bribe him with chocolate until the end. Here's a snapshot of him in the barbers chair looking very serious and another couple of recent photos....
I've managed to get a couple of shots of the little fella while he's on his feet and walking around, although when he saw I'd got the camera he almost broke into a 'run' and came hurtling towards me it was hilarious. He's doing so well, he's much steadier on his feet now and when we're at home he spends more time walking than crawling. He's not so keen on walking in his shoes though, bare foot seems to be the way to go for Thomas. I'm so glad I forked out all that money on those lovely Clarks shoes ;-)
We're back at Birmingham for a check up next week so I'll fill you in after the appointment. He seems really well right now so we're hoping it all goes smoothly - in the meantime enjoy the photo's.
Thomas modelling his new waterproof jacket - just so cute!
We've just returned from a weeks holiday in North Devon - we had a great time. The weather was fantastic and we spent a few days on the beach. Thomas is a real beach bum, he loves the sand (so much so he likes to taste it!), he got really excited when we got to the beach and couldn't wait to get out of his pushchair. He managed to get sand everywhere, in places that I didn't think was possible! Here's a piccie of him in his beach suit.
And another one of him on the swing. Since we've got back he's really got to grips with walking. He's spent the last few weeks doing a few steps here and there but in these last few days he's really progressed. It's really funny seeing him totter about with his hands in the air, he pulls some hilarious faces while he's concentrating and he's so proud of himself. I'll try and get a photo of him in action.
Well the little fella has started taking a few steps :-) His current record stands at 4 before he realises what he is doing and then resumes crawling. Here's piccie of him having his new shoes fitted. Is it me or does he look pretty pleased with himself ;-)
Here's a piccie of the little fella wearing his Easter hat, I say 'wearing' in the loose sense of the word as you can see it's far too big for him and he's taken to wearing it Eminem stylie! Never mind, much fun was had by all especially me during the Easter egg hunt ;-)
I thought I'd post an update as I haven't for a little while. Well, the little man had a clinic appointment today at our local hospital. They were very pleased with him! His weight is now 22lbs; since his operation in January he has put weight on at a faster pace and has moved up a centile on the baby weight chart which is really good news. He is hitting all his development milestones brilliantly and doing everything they expect a 13 month old baby to be doing. Despite him having a cold (he has the snottiest nose ever!) his sats were still 86 and his heart sounds normal, which is great and we are really pleased :-)
Thomas' favourite past times at the moment are eating coal off the fire, taking out the Sky viewing card and spinning CDs across the room but this morning I caught him eating plaster out of the wall - he's found a loose bit behind the radiator and makes a beeline for it hmmmm..... Basically if he's quiet for more than 2 minutes I know he's upto no good!
He is cruising around the furniture and walking happily when gripped to our finger but hasn't quite got the confidence to take the plunge himself yet. I don't think it will be that long though before he's staggering around the place as if he's had a night out on the beer.
I had to share this photo with you......this is what mealtimes are like at the moment - VERY messy. Thomas certainly likes getting 'into' his food and this is what happens when his favourite meal (cheese and tomato pasta) is for dinner, you can probably imagine the carnage when something less appetising is on the menu :-)
Wow what a birthday weekend! We had a really lovely time. On Friday (Thomas' actual birthday) he spent the morning opening and playing with his birthday present which is a Thomas the Tank Engine first train set. It was good fun, although the little man seems to prefer dismantling the track rather than putting it together!
Here's a piccie of him opening up his birthday cards.
Thomas met up with his mate Alex at a soft play centre for lunch, and practised his walking by pushing along one of the baby walkers. Here he is in action.
The rest of his birthday was spent with family and friends, playing with all his new toys. I used to think our house was quite big but that was before Thomas' toys multiplied overnight! Sunday was party day, we hired a local church hall, a bouncy castle and a ball pit and filled it with all our friends and family. It was a great day and it was really nice to see so many people. A baby's first birthday is always such an event but throw two major heart operations and a cardiac catheter into your first year of being on the planet and it becomes a REALLY special day. Thank you to everyone who came and shared it with us and thank you all for your very generous presents. Thomas is a very lucky little boy. Here's a couple more photo's of the birthday boy.
Just thought I'd let you all know that Thomas had his post operation clinic appointment today and it went really well!!! His oxygen saturation levels are 86 compared to 72 before his operation, his weight is now 20lb 4.5 oz so he's regained the weight he lost in hospital and added some more so that's really good news. His heart scan went well and showed good heart function so all in all we're really pleased :-) They said the bump that he has got on his scar is fairly common and should disappear as he grows, but if it doesn't he has got to have another operation in a few years anyway so they will see how it is after that one.
WHAT a little superstar we have!!!!!
We're soooo pleased with his progress post his second op. He is just such an amazing little boy and we can't believe he is one year old tomorrow. In fact this time last year I was in throws of labour - ouch!
Reaching his first birthday is such a milestone, when we were diagnosed with his condition back in October 2005 we really daren't think about this day, BUT it is tomorrow, the house is suitably decorated with banners and balloons and it's all systems go for his birthday party on Sunday.
I'll let you know how the birthday weekend goes......
Happy Birthday for tomorrow to our very precious, beautiful little rascal Thomas Peter Hooks!!! Yippee!! XXXXX
Well Thomas is doing really well since he got home from hospital :-)He is crawling around much faster - although he finds the wooden floor a bit of a challenge as it's slippery!. He has started pulling himself up and generally seems to have more energy than before, he still has a little breather now and again but he's doing so well and we are very proud of him. His new tricks are he says 'tock' (as in 'tick tock') when we point to our watch and he looks up when you ask him where his balloon is. How sweet is that! I am now working on 'Project 1st Birthday party' :-) which is great fun, I just cannot believe our little man will be one year old next friday. He's our little star!
Blimey what a few weeks we've had! It all started about 2 weeks before Christmas, the little man got a tummy bug which wasn't pleasant and really unsettled him. Then, just as he'd recovered from that I got tonsilitis, just in time for Christmas. So Thomas' first Christmas wasn't quite as we'd planned but Thomas had a lovely time. He was a bit overwhelmed by all of his presents and was more interested in the wrapping paper ;-) but now he loves playing with all of his new toys (which seem to have taken over our house!). Here's a piccie of him of Christmas day....
Thomas' 2nd Operation The New Year came and Paul and I really started to think about Thomas' second operation. Up until this point we could easily tell ourselves 'it's next year' and try to put it to the back of our mind. The thought of the op sent both of our stomachs into knots, we couldn't bear the thought of our little rascal having to go through such an ordeal. We were trying to gear ourselves up for 7th Jan, when he would be admitted to hospital, but on Wednesday 3rd I received a phone call from Mr Barron's secretary to say there had been a cancellation so Thomas could have his op the next day if we agreed! My immediate reaction in my head was to say 'No way' but sensibly we knew it was the right thing to do so after running around like headless chickens (and a few tears) we got all our stuff together and off we trotted to Birmingham.
Unfortunately there was no beds available in intensive care so Thomas didn't have his op on 4th Jan or 5th Jan, they let us go home on the friday afternoon for the weekend as there was no point staying in, they only perform emergency ops at the weekend. What a palaver! On Sunday 7th Jan we called the ward to see what the situation was and was told to go back in, Thomas was first on the list for his op the next day, so off we trotted down the M6 again.
So Monday 8th January came and we took Thomas down for his op at about 8.40am. He was all smiles and giggly as we walked him to theatre, we felt awful as we knew what was ahead of him but obviously he was oblivious. It was really really hard for us to hand him over, all sorts of things go through your mind, it's just an impossible situation. But by 12 noon we got the news that the op had gone to plan and the little man was ok - hooray!!!! It was such a massive sense of relief - we felt euphoric :-) We went and visited him in Intensive care about an hour later and again it was really hard to see him on the ventilator hooked up to machines and drips. Although it was when they started bringing him round that was the hardest. He was so fractious and so upset, nothing would comfort him. He had some secretions on his chest so they had to suction him a few times which just looked barbaric. Paul and I really struggled at this point. His blood pressure was a bit high but the docs were still quite pleased with his progress but he was so distressed all evening and it was really upsetting to see him like that.
Since then though the little man has done remarkably well, he came out of intensive care the following day, he was monitored as high dependency for another day and then on the normal ward. We were expecting to come home on Saturday but the little man had a temperature in the morning and so we stayed in another night for observation so we got home Sunday afternoon. There really is no place like home :-)
Thomas has done remarkably well and we are so so proud of him. It makes me burst with pride when he crinkles up his nose and gives me a smile. It will take him a little while to recuperate but he is doing great so far and seems really happy to be home. It's just amazing how far he has come in a week after such a major op, to be honest it blows my mind. He is certainly made of strong stuff. Well done little man! xxx Here's a photoof him in hospital 4 days after the op (I'll spare you the photo's we took in intensive care)
Thanks to everybody for all your support and for all your text messages - it really does make a difference. Good job I get 500 free texts with my tariff ;-) xxx
