Tuesday, May 17, 2011

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Fresh air for the first time in almost two wks! We got off the ward today and went to the outdoor play area. It was gr8 to have a change of scenary and for Thomas to breath some real air. His fluid seems to be clear today. He'd drained abt 80mls tho by 10pm this evening. They said the policy here is to do a cardiac catheter if a child is still draining 2wks post fontan. They are happy that Thomas' has reduced and are hoping it stops in the next few days otherwise they'll do a cath at the end of the wk. I know they know wot they're doing but i hope we can avoid this. He's fine in himself, looks good, sats and obs all fine. It would be such a shame to hav to hav a cath for a few mls of fluid. Keep ur fingers crossed this doesn't happen. His INR was 2.3 today so spot on. He's gained some weight so all looking good we just need the drain to stop please. I'm missing Samuel as not seen him since Sunday I want to try and see him tomorro, Paul needs to work as well and we don't like to leave Thomas on his own so it's a bit of juggling act at moment.--
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